Rapid-onset obesity with hypothalamic dysregulation, hypoventilation, and autonomic dysregulation, known as ROHHAD is a rare disease that affects only 75 people worldwide. One of those people is 8-year-old Marisa Carney of Bayport, and over the years, NY Auto Giant has made a commitment to Marisa, which we recently supported in a big way, by donating $103,250 to fund her participation in a key study that seeks to find answers, and hopefully give Marisa a better life.
ROHHAD affects a person's ability to breathe for extended periods of time off a respirator, because of impairment of the nervous system, which reduces lung function. ROHHAD also causes onset obesity in the first two to four years of life. Currently, there is no treatment or cure, as the source of the disease has not yet been determined.
NY Auto Giant partnered with ROHHADFight, a non-profit organization here in Long Island to help raise money in order for Marisa to take part in a study at Lurie's Children's Hospital in Chicago, where they are currently researching the disease to find any diagnosis, treatment, and cure possibilities. For every vehicle sold at all our locations across Long Island in the month of November, NY Auto Giant donated $25 to the Carney family, and sold over 5,000 cars to surpass the goal, and present the Carneys with a check for $103,250.
To learn more about Marisa's fight with ROHHAD, you can read a feature story in the Long Island Press. You can also learn more about ROHHAD and how you can help by visiting www.ROHHADFight.org.